New Born Baby with a Rare Skin Disease

My heart is crying while watching this video. This aches my heart so much. I saw this on the youtube video and while scrolling down the page, I saw one of the comments say, the baby has a very rare skin disease which is called harlequin. It also said that it is painful and the skin is thinner than most of the babies. I don’t know if the baby still exists now. Hope she/he survives.